We need to raise awareness on sickle disease - Prof Ohene-Frimpong

President and National Programs Coordinator of the Sickle Cell Foundation, Professor Kweku Ohene-Frimpong has underscored the need for individuals suffering from sickle cell disease to take very good care of themselves and avoid things that may increase their pain.

Sickle cell disease he told Nyankonton Mu Nsem on Rainbow 87.5Fm is a serious public health concern which should be given attention.

He further said there was no proper way of maintaining or taking care of this disease, but people suffering from this condition should stay away from cold things, such as air conditioned rooms, bathing cold water, and other objects that will make them feel cold.

Professor Ohene-Frimpong cautioned parents and health workers to screen babies’ right after birth because most of them die due to infections and also to be able to diagnose and begin proper treatment for sickle cell babies.

According to him, a simple, painless blood test called the hemoglobin electrophoresis can be done by a doctor or local sickle cell foundation. This he stressed was important in detecting and treating infections at an early stage. He said, ‘’It is important to know if you carry the sickle cell disease. This will help in treating you as a sickle cell patient.’’

Sickle Cell Disease (SCD) is a major genetic disease in most countries in Sub-Saharan Africa including Ghana. Sickle-cell disease (SCD) is a genetic blood disorder that affects the haemoglobin within the red blood cells. The recurrent pain and complications caused by the disease can interfere with many aspects of the patient’s life, including education, employment and psychosocial development.

In recognition of this, the WHO under the DNC Department, supervise and coordinate interventions relating to the prevention and management of SCD.

WHO intends to support Primary prevention (genetic counselling, general public knowledge); Early detection - screening; reduce morbidity ; chemoprophylaxis, vaccines, clinical care of special groups (children, pregnant women); capacity building Human resource; improve quality of life of patients and build partnerships.

Globally, June 19, is a day set aside to raise awareness of the disease and in conclusion, Professor Ohene-Frimpong called Ghanaians to join in efforts to create more awareness.